Last Updated on July 19, 2021 by melissanreynolds
This Ultimate Guide to Chronic Fatigue will feature more practical resources than theoretical. What we need are concrete steps of what to do, while exhausted. I will share many articles that I have created with loads of theory, research and information. But the point of this article is to give you some things to consider, research and try.
So what are we going through here?
- Definition and Symptoms
- Diagnosis and Prevalence
- My Experience
- The First Book You Should Read
- My Five Recommendations for Managing and Mitigating Chronic Fatigue
- Wrap Up and What to do Next
Chronic Fatigue Definition & Symptoms
Chronic fatigue is defined as profound fatigue lasting six months or more. For loads more detail, see this article.
It is NOT sleepiness, tiredness caused by too many late nights or anything else the next person on the street experiences. (It is frustrating when a person unaffected by chronic fatigue says, “me too” when a person with chronic fatigue tells them they are exhausted – at least they can go get a few good night’s sleep and be fine. This is ongoing for the person with chronic fatigue).
It IS unrelenting and usually coexists with other symptoms, such as chronic pain and insomnia. It also causes other symptoms, such as post-exertion malaise (fatigue after exertion), dizziness upon standing, headaches, difficulty concentrating and more. See this article for more on symptoms.
The Severity of Chronic Fatigue
The severity of the fatigue can be anywhere from mild to severe. With most people falling into the mild to moderate category. With mild fatigue one can generally function, with difficulty. This is my favourite rating scale as it shows the symptoms and the general amount of activity we could/should do. For a long time there was a mismatch between my symptom level and the amount of activity I was trying to do, which left me in a boom/bust cycle. Continually making my symptoms worse.
With all of the things I do to manage my symptoms as well as possible, I am about a 60, “Able to do about 6-7 hours of work a day. Mostly mild to moderate symptoms.” I share more about this in How I Halved My Pain and Fatigue Levels post.
Chronic Fatigue Diagnosis & Prevalence
Unfortunately the path to diagnosis and treatment is long for the average person with chronic fatigue. Because the symptoms are so vague, they can be easily ignored.
Because so many people remain undiagnosed and untreated, it is difficult to say how many people suffer. There is also an entire discussion around when chronic fatigue is considered chronic fatigue syndrome. Very rough estimates suggest around 17 million people worldwide may have chronic fatigue syndrome. For more see this article.
My Experience with Chronic Fatigue
I have been struggling with pain, fatigue and insomnia since my teenage years. I was sent to specialists at 17 years old to investigate and they ended up implying I was making it up because the pain changed so much.
During my last semester at university I got a very bad bug (like a flu) and the fatigue that came with it was overwhelming. Even after treatment (antibiotics) and several weeks of rest the fatigue never fully receded. Over the past decade it has reduced in intensity, especially with all of the treatments I will share below.
The First Book You Should Read
From Fatigued to Fantastic by Doctor Teitelbaum is my number one recommendation. Affiliate notice: Please note this is an affiliate link and if you make a purchase using this link I may make a small commission at no extra cost to you.
My Recommendations for Managing and Mitigating Chronic Fatigue
In brief, here are what I recommend for managing and mitigating chronic fatigue:
- Working on sleep to improve it as much as possible (hard, I know)
- Pacing (using the energy you do have well)
- Resting as well as you can
- Living as healthily as possible
- Managing other conditions as best you can
Let’s look at these in a little more detail
Sleep is so important, yet so elusive for people with chronic illness. Insomnia is so prevalent. I have worked very hard on this because I suspected that sleep would make a difference for me. And it does. But, despite my best efforts, it is still difficult.
This post outlines all I have learnt on sleep and will give you a list of things to try.
Using the energy that you do have well is so important. My major gains did not come until I reduced my work hours and learnt to rest well.
Learning to rest well has been so important to my physical and mental wellbeing. Sleeping poorly, being unable to nap and experiencing chronic fatigue is just so emotionally draining! Once I learnt to rest well in the form of guided meditations, my life changed for the better.
This is why I have dedicated hundreds of hours to yoga teacher training, meditation teacher training and sharing these resources with you.
I have a free series which will help you get some rest. One of the 10 minute classes is my favourite guided meditation (that I use daily), another is restful yoga. All four will leave you feeling a little relaxed and refreshed.
You might like these posts about rest:
Living as Healthily as Possible
You want to give energy with your lifestyle and not drain it. This post here will help you with this. Essentially, you want a nourishing diet, plenty of water, fresh air, gentle movement (whatever this means for you right now), less stress and more. This post is all about how to approach Yoga with Chronic Fatigue Syndrome .
Managing Other Conditions as Well as Possible
This is multipronged – one the one hand, other conditions add to chronic fatigue and on the other, medications can add to it. Discuss with your doctor if any of the medications you are on cause excessive fatigue, and if so, if there is an alternative.
This post contains a lot of resources. I have been researching, experiencing this and sharing these resources for many years now so there is a lot here.
What now? Action Points
Choose ONE area to work on. For example, try some Yoga Nidra for some good rest. Or look into pacing or sleep.
Then come back to this post and work through the next thing.
Share with us – what are your best tips for managing fatigue?