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So I try to move every day.
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The last few weeks have been difficult but illuminating.
I went to the pain clinic and did some physical testing that left me with a knee flare up.
I dealt with it fairly well, but it was hard. I couldn’t walk due to the severe pain. The not walking caused my back to flare up too. The extra pain caused extra fatigue.
But I did what I do best, I coped. On the first few days I rested and took medicine as the pain was rather severe. I used the space the pain relievers bought me to do my leg strengthening exercise (essentially leg lifts focusing on engagement in my thigh – my physio gave me this specifically for the knee pain). I also used an ice pack on it as I couldn’t bear the thought of heat on it.
After a few days I went to the pool. I walked across the pool in hip/chest height water holding my son (I had no childcare, plus he loves the water!). We managed 10 times across and then soaked in the family spa. It was bliss. We have done this three times in the past two weeks.
As my knees calmed down I slowly increased the amount of incidental walking I did during the day. When that brought less pain, I walked to the shops and back (20 minutes with a break in the middle).
Eventually that led to me resuming our usual 20-30 minute walks.
Now I am still sleeping with a pillow under my legs and stretching my legs like a maniac, but my knees are better and my back is under better control.
Interestingly, my physio doesn’t think the knee pain is just Fibro. This means I need to get it checked out to ensure it’s not actually causing damage. Exercise will almost certainly keep it in check, but once it’s sore, if it is causing damage, I may need another plan to deal with it. I will keep you posted about that!
I have struggled with body issues for forever (don’t most women?). Before I was struck by the chronic fatigue syndrome in in my last year of university, I exercised a lot. I walked everywhere and I went to the gym. Sometimes I walked to the gym (20 mins each way).
Before I left my full time job I was forcing myself to walk as much as possible and do one Pilates class each week. But my legs, glutes and lower back were ALWAYS tight and sore.
When I changed my lifestyle, I allowed myself to find the balance between enough exercise but not so much that it hurt. I walked 20-30 minutes each day and did a 20-30 minute Pilates or yoga routine three times a week. But I was less rigid on “bad” days.
Due to my body type and my previous levels of exercise I have very muscular legs. So when my pregnancy forced me to slow down (a very slow 20 minute walk by my last day) my legs became less defined.
As I progress further from pregnancy and my baby sleeps a bit better, I am able to pick it up a little. I have been able to do more walking and exploring which I love to do. I love finding a new walkway or beach and I love sharing this with my boy and husband. Numerous family adventures include walking in new places.
With the tremendously low levels of energy and high levels of pain that I have experienced since I had my boy, I have come to look at food more as fuel. I am more relaxed about it. My husband loves that I am not super finicky about food (as I’d have to be to maintain a tiny figure). Though, he does love the idea of my having a flat tummy!
I have a better understanding of food and exercise for fuel and survival, rather than aesthetic reasons. But I still struggle with my body image and that is a work in progress. I am learning to be thankful for what my body can do. That it carries me through each day, even if some of those days are slower than others and all of them are slower than most people’s. Having chronic pain means that I am more aware of my body and all of the work it does to keep me alive. And for this, I am thankful.
In a crazy confluence of signs I keep coming across the idea to meditate. My new doctor suggested it, it is in the research, it is recommended by a few new websites I have found and I have recently found Beat Fatigue with Yoga by Fiona Agombar.
This book begins by explaining what causes fatigue, goes into an introduction to yoga and the “eight limbs”, provides many yoga poses for practice and concludes with suggested routines according to the level of fatigue. Agombar’s own story is included at the end, she writes of her struggle with ME/CFS and how she used yoga to be well.
In seeing the recommendations for those with “moderate CFS” I have come to realise that I had been attempting too strenuous a yoga routine for my new state. I have had to admit that during pregnancy, and even now, I have to consider my CFS more moderate than mild. This irks me, but gives me a good place to build on for my yoga work.
I don’t buy into the spiritual aspect of yoga. But I do, wholeheartedly, get the idea of bodily balance, chemical upheaval and the natural rhythm of the body. Having an overactive nervous system, yoga calms me. My body tends to react positively to the physical poses and, pre pregnancy, I was pleased with how far I had advanced in my practice.
Because of this book, I decided that my second Tiny Mission (which I will write about as I see results) would be to do Total Relaxation Pose daily as a gateway to meditation. For about three days, I did this faithfully, on the fourth day I forgot and on the fifth I went a step further and did a guided relaxation for 15 minutes. It was bliss! I felt so nice afterwards! It is my hope that I shall build relaxation/meditation into my daily routine.
This book seems to be a great introduction to doing yoga for those with fatigue issues, I’d recommend it as a nice place to start because yoga can be adapted for most people, but it is great to be written by someone who understands CFS and post exertional malaise.