fatigue Archives - Melissa vs Fibromyalgia

Posted on March 31, 2019July 30, 2019 by melissanreynolds — 1 Comment

Fatigue and Energy in Fibromyalgia -Fibromyalgia Framework Series Part Seven

Welcome to part seven – fatigue and energy in fibromyalgia! I hope you’re enjoying this series and have made some progress.

We have discussed:

The Fibromyalgia Framework
Diagnosis, Misdiagnosis and Fibro Books
Tracking Your Progress
Sleep
Central Nervous System
Pain Management

FATIGUE AND ENERGY IN FIBROMYALGIA

I hope that by improving your sleep, managing pain as well as possible and meditating that fatigue is also reduced. In this part we will discuss some extra energy boosters, energy saving pacing and supplements that may help. Severe, ongoing fatigue issues that are not mitigated by good sleep and management of pain will need a real partnership with a doctor to work through.

PACING FOR FIBROMYALGIA

Pacing simply means to alternate rest with activity in a manner congruent with your pain and energy levels.

Before I had begun my journey to wellness, when I was still just trying to cope with being a young woman in terrible levels of pain and fatigue, I had this glimmer of hope in the form of reduced work hours. I had begun to conceive of the idea of pacing and boundaries before I knew anything else. Reducing my work hours to ¾ time and cutting the two hours of commuting each day was the beginning of my wellness journey and such a vital step.

HOW TO ASSESS YOUR BOUNDARIES AND IMPLEMENT WISE PACING?

Write it down!
Write down what you do each day and track your pain and fatigue levels – look for the patterns over a two week period.
Listen to what your body is telling you. Grab an empty piece of paper and a pen and free write about your ideal day, see what your intuition is telling you.
Or, to start, take what you can get. Perhaps the first step you can make is to drop one afternoon or one day off work? Start there!

THE CFS/FIBROMYALGIA RATING SCALE

For a long time, I prided myself on being a 60 on the CFS/Fibromyalgia Rating Scale, “Able to do about 6-7 hours of work a day. Mostly mild to moderate symptoms” despite pain levels more in line with a 50, “able to do 4-5 hours a day of work or similar activity at home. Daily rest required. Symptoms mostly moderate.” (My italics)

I pushed myself to 6-7 hours per day minimum and suffered moderate symptoms. I had missed the key as suggested in this article on understanding our situation: “What is the highest level of functioning I can sustain without intensifying my symptoms?” (My italics) If my pain is at a moderate level, then I should not be striving to work the hours of a person with more mild symptoms, especially given that I go home to small children as opposed to being able to rest. You need to take into account your symptom level and your situation.

These articles are from the website CFIDs and Fibromyalgia Self-Help. They run a free course that takes the idea of pacing into more detail.

SUPPLEMENTS FOR FATIGUE AND ENERGY

See this blog post for more information about supplements for Fibromyalgia energy.

Some things that might be useful for fatigue:

CoQ10 (ubiquinol in its most activated form)
D-ribose
Adrenal support herbs
Acetyl L-Carnitine
B-complex vitamin
A general multivitamin such as the Energy Revitalization System by Dr Teitelbaum

Action: I’d love to hear your favourite energy boosters, feel free to come and join Melissa vs Fibromyalgia Facebook group and let us know.

Do you wish that you could have all of the parts of the Fibromyalgia Framework Series, along with the templates to help you plan with space for notes in one place? There is! The Fibromyalgia Framework Series Workbook is available here. Find it physically here. Please note that some of my links are affiliate links and I may make a commission at no extra cost to you.

Posted on February 15, 2018 by melissanreynolds — 8 Comments

What Works for me: 9 Things to Fight Fibromyalgia

I have shared about my journey in hopes that the information helps someone on theirs. I am in a much better position than I was for the entirety of my early and mid-twenties. I didn’t manage to get on the path to better wellness until I was 25 and even then it was a slow process, I am still working on it.

Without rhetoric, without frills, I thought I’d share what has worked for me:

1. Reduced work hours – my body simply couldn’t maintain full time work, plus the one hour travel each way, and cope with the pain and fatigue levels.
2. Supplementation – I just don’t absorb some vitamins and minerals. I eat plenty of meat and leafy greens and still my iron levels hover, unassisted at the lowest of the very large “healthy” range. Finding out that they should be much higher and working toward that made a huge difference. A potent multivitamin also seems to make a difference for me, so there must be other vitamins for which absorption is an issue.
3. Physiotherapy – this is my body’s necessary physical support. Through much trial and error, I have found that my over-reactive muscles needed less activity and a specific treatment plan. This includes neck tractions, acupuncture needles inserted into key points (neck, shoulders, upper back, lower back, glutes). If I ever try a massage instead of physio, my neck pays for it dearly – nothing else activates, releases and keeps it released for two or three weeks. And my neck can cause headaches, dizziness and nausea when bad.
4. Sleep – I have to take low dose amitriptyline in order to get to sleep, take pain relief for my neck, stay in bed for nine or 10 hours and accept that I wake every one or two hours (therefore not making a full sleep cycle very often). But if I can get eight hours, no matter how broken, it makes a dramatic impact on my pain and fatigue levels the next day. I have to go to bed by 9.30/10pm in order to hope for enough sleep before my son wakes up, reducing night activities. Low Dose Naltrexone helps me a lot with sleep now.
5. Reduced activity levels – my body does not cope with too much, so in addition to my reduced work hours, I must also limit my activity levels. I have to include rest periods also. We don’t often go out at night, and when we do I really struggle to stay awake and get quite sore, so it never feels worth it. This is one part of the lifestyle to cope that I am constantly struggling with.
6. Meditation– I can’t nap no matter how exhausted and miserable I am, so meditation has been a lifesaver. Lying down for 30 minutes with my heat pack and a guided meditation makes a huge difference for me. It’s the difference between a nice afternoon and a long, tiring, painful afternoon.
7. Exercise – stretching sore, tight muscles is crucial to keeping them moving and should never been underutilised. Gentle walking, yoga and Pilates have been useful for me to keep me active but not overdo it. My muscles tend to respond to too much AND not enough exercise, my sweet spot tends to hover at 20-30 minutes per day.
8. Pain Management Techniques – through a lot of trial and error, I have a key list of pain management techniques that I enact every day. This includes natural and medicinal options, with a heavy focus on natural options. I have found great relief from low dose naltrexone.
9. Hope – never will I allow myself to lose hope. There’s always more to try, there’s always a silver lining. We need to hold onto this as we journey because pain and fatigue can really do a number on your emotions, making things seem worse at your worst.

For more information:

you v fibro e course — My free micro course

Melissa vs Fibromyalgia book cover — Available on Amazon now

Posted on November 12, 2017 by melissanreynolds — 7 Comments

Low Dose Naltrexone (LDN), Fibromyalgia & Me

Low dose naltrexone came on my radar last year and after consuming all of the research and anecdotal evidence about its impact on Fibromyalgia, I earmarked it for my major experiment post-baby (I had baby W last December).

Donna Gregory Birch, a well-known Fibromyalgia writer who explains how LDN works: “in low doses (typically 1-4.5 mg), naltrexone enhances the body’s immune system by boosting the production of endorphins, which in turn promotes healing and lessens inflammation.

Research has been showing promising results. Dr Jared Younger started with a tiny study and found positive results, approximately 65% of patients experienced clinically significant results. He’s doing a bigger study this year.

As a member of an active group about what works for Fibromyalgia and two groups about low dose naltrexone on Facebook, I have seen many testimonies from people with Fibromyalgia experiencing changes due to LDN ranging from mildly beneficial to miraculous. There are also those for whom it does not work or they do not try it for long enough – this is not a quick fix for most.

Further information on how LDN works is well explained in this article, which includes many links to research.

If I could experience a 30% (this is considered clinically significant and therefore as success) decrease in pain and fatigue, my life would change! I could be a mama, a wife, do my work and have some form of a life outside that and not pay with such significant levels of pain, fatigue and other side effects of the Fibromyalgia.

I can only share research and what works or doesn’t work for me. We are all unique and react differently. If you’re interested in LDN then read the research/information and then discuss it with your doctor.

My updates

Low Dose Naltrexone: An Experiment
Low Dose Naltrexone: Update 16 Weeks

Now

I have been reluctant to post this update, I was waiting for something solidly quantifiable but in lieu of that I’ll give you my anecdotal evidence that it is working.

Around 8 months ago I began taking low dose naltrexone and have slowly titrated up to a dose of 4 milligrams. It took me about six months to get to 4 milligrams as previously my body couldn’t cope with that level, I experienced vivid dreams and flare ups of ulcers and cold sores each time I tried to titrate up too fast. I may try 4.5 milligrams later on.

For now the effects that I have noticed are:

slightly more stamina
slightly better sleep
slightly less fatigue and
slightly less neck pain – from an average (which changes over a day as well as the week) of 4-7/10 down to about 3-5/10

Anyone who has been following my blog for a while would know that my neck is the area I struggle with the most. With that a little more in check, the fatigue is a close second.

I don’t think my functionality has increased however the quality of my life while performing all that I do has increased. When I do overdo it or have a bad night’s sleep the pain will increase. The heatpack is still my best friend, the computer is still my neck’s nemesis and I can’t hold it for too long in one position – but it’s better than before.

I still have hope that as we edge toward the one year anniversary that I’ll experience more miraculous effects. For now it is definitely worth the $30 a month I pay for the perscription.

This combined with meditation and gentle exercise, paying attention to what I eat and trying to limit stress have been the best things I could do. I hope that when I start working I will be able to maintain half-time hours and not return too much closer to the previous pain levels.

I’d love to hear your experiences with LDN. I’ll write an update when we get closer to a year.

For more information

Low Dose Naltrexone is one of many ways that I manage pain. This printable contains the chapter of the same name from my book along with some templates for making your own plans. I created this series for those of us who are not able to consume an entire book right now, or who want to work on one thing at a time.

Posted on November 6, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries Weeks 36-38

After a week of intensified Braxton Hicks contractions, escalating back and hip pain and other excellent end of pregnancy symptoms, I was glad to make it to week 36. At week 36 baby’s lungs are better prepared for the outside world and he’s mostly ready.

Week 37 is considered term. Nu came at 37 weeks and 4 days, for which I was profoundly grateful as I was exhausted and in so much pain by then.

Sleep deprivation is like putting Fibromyalgia on crack. It makes sleeping even harder, you lay awake in pain for hours at night and spend all day in pain. The fatigue is unrelenting. I’m trying to severely limit the Panadiene as the midwife said we don’t want it building up in my system before birth.

Late pregnancy symptoms are uncomfortable for anyone. The heaviness of the belly, the constant bathroom stops, the back ache, menstrual like cramps, Braxton Hicks contractions, alternating hunger and nausea, fatigue. At least these are for a finite time. Though I am a little jealous of those who know their end dates (inductions and cesareans)!

Unfortunately, we found that my iron levels had completely depleted and I had to quickly have an injection at week 37. It certainly explained why I had been so exhausted, lethargic, nauseas and in so much pain. Within days of the injection I felt so much better! It was amazing, I hadn’t realised how sick I had gotten.

I managed to spend the day out with my family and walk more than I had in weeks on the Saturday of that weekend. On the Sunday I managed to meet a friend for coffee and wander around the mall with Nu in tow (I had been too exhausted to consider wrangling him out of the house). It was really nice.

I had a show and a little mucus coming away over the weekend after 37 weeks ticked over and had stronger tightenings which made me a little excited. I couldn’t wait to meet my boy.

At week 38 we began getting ready for Christmas and put up our tree and took Nu to a Christmas Fair. It was really lovely as he’s beginning to be able to understand and get excited with us. My stamina had greatly decreased by then, Nu saved me a lot of the late pregnancy symptoms by arriving early. I hoped we wouldn’t get too far into December as I wanted baby to have his birthday separate from Christmas and my back needed him out!

I have shared this journey so that people can see what if is like for this mama with Fibromyalgia to do pregnancy, find it in my Pregnancy Diaries page here.

For more information about pregnancy and Fibromyalgia:

Sign up to receive my free micro-course: Pregnancy and Fibromyalgia: Arm Yourself with Knowledge, Tips for Early Pregnancy Symptoms, Natural Pain Relief Options in Pregnancy reports and more.

Posted on October 31, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries Weeks 34-35

Week 34 was characterised by fatigue, pain, menstrual like cramps, many Braxton Hicks contractions and growing excitement. My body was definitely gearing up for the last weeks and delivery.

Pacing became necessary. 30 minutes of activity in exchange for a rest with the heat pack.

My neck, which had coped so well previously, started to get quite stiff and sore. After a day of doing too much on the computer (finishing two assignments for my bookkeeping course and scheduling two blog posts) I experienced pain levels of 7-8/10 with a severe headache causing nausea. I am quite proud of my coping mechanisms – once Nu was in bed I had a hot shower, used the TENS machine on my shoulders, and heatpack on my neck. After coming off my one Panadiene per night in preparation for baby’s coming (and wanting to avoid any potential breathing issues from the codiene, very low risk) I allowed myself to have one. This all enabled me to get to sleep. I did wake every half an hour at first, but then managed a three hour block in the middle of the night, before lapsing back to frequent waking. For me, for this pregnancy, this was quite good. I did have to take it quite easy for next few days.

Baby seemed to burrow himself lower in week 34. When I sat down it was like he was sitting in my lap. There were occasional stabbing pains down low and more painful Braxton Hicks contractions. One night I woke with one that required breathing to get through. Each afternoon and evening seemed to bring a flurry of them, whether walking or resting (though I was mostly walking at this time and herding the 2.5 year old through the evening routine).

With my Whooping Cough vaccine down, week 35 ticked over and the birthing centre tour taken, all that needed to happen before I was ready for baby was for two weeks to elapse. I wasn’t sure when to hire the baby carseat (I didn’t want it to sit in the car, unused for four or five weeks). But, apart from that, I had everything organised.

I found some relief with a lavendar massage oil on my low back and glutes (and my whole back whenever I could talk husband into a massage) before bed. On the nights my neck was making it hard to lie down I used a menthol massage cream. My heatpack, pelvic tilts, child’s pose, meditation, stretching, resting, good food and lots of water got me through the difficulties of late pregnancy.

I have shared this journey to show what it is like for a mama with Fibromyalgia to do pregnancy, see my Pregnant Diaries and Resources here.

For more information about pregnancy and Fibromyalgia

Sign up to receive access to my free PDF reports: Tips for Managing Early Pregnancy Symptoms, Natural Pain Relief Options During Pregnancy and my free micro course Pregnancy and Fibromyalgia: Arm Yourself with Knowledge.

Posted on September 27, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries: Week 30

I couldn’t believe my baby was coming sometime in the next 7-10 weeks!

This pregnancy was such a different experience to the first one, for which I was so grateful. It was challenging and I was pretty sore and tired (and there’s more to come) but I tried to savour the good bits. To remember the feeling of my tiny baby moving within me, to know I was growing a human life. It’s amazing.

A lot of my to-do list had been ticked off for baby. I was not prepared to go out for long shopping trips anymore. Most of what’s left was to prepare what I could in advance to make life easier.

I had been daydreaming/visualising about how it would be better than last time, without a prolonged labour experience, without being left without my husband in the first days, without my son being sick and needing to be back in hospital after three weeks…The difference this could make. I also had a list of the things I could try while nursing and after that in order to support my health – including rhodiola rosea for energy and adrenal support.

Nursing was occupying my thoughts. With Nu I really struggled, he was sick and a lot of problems arose with that, it also hurt (my nipples were ruined and my actual breasts ached so badly – I cried when I had to go and express). I hated it. It did not help my experience of the first six weeks of motherhood.

This time I was hoping that a better start, the baby being well and a different baby would make a difference. I was hoping that baby will latch well, drink well and not be resolute about going to sleep after one minute! I was also hoping that the entirely different situation will give me some leeway in the pain and energy levels. I had my double expressing machine, nipple cover, cream and ice packs ready. I was going utilise the six weeks my husband is home to really make a luxury out of feeding – go and lie down comfortably with my heat pack and potentially a guided meditation to try to make it a rest at the same time.

My lower back/hips continued to feel rather sore, almost like they were being sawn off. I had found that not taking a walk (in addition to my 8000 incidental steps per day), doing pelvic tilts and yoga stretches on all fours made a difference. As did lying on my side but leaning slightly back on my maternity pillow when in bed. Heat pack, warm showers and arnica rub helped.

Meditation continued to be a life raft. 45 minute body scans with my heatpack about lunch time made a huge difference to my pain and energy levels. The days I couldn’t lie down were quite difficult.

From the day that 30 weeks ticked over, all of a sudden, I felt blinded by exhaustion. By the evening I was in a lot of pain and so tired I felt ill. I had to crawl into bed as soon as Nu was in bed to lie down. Lying down helped, but being in bed for so long made my low back and hips very sore by the early hours of the morning. Being proactive (and knowing at 27 weeks my iron levels had been at the bottom of the normal range) I scheduled an iron injection for a boost. This wasn’t without troubles, it is painful to get the injection and for the day after, and it also leaves a bit of a stain (I still had a stain from where I got it last December). But it actually made all the difference in the world.

I was simultaneously counting down, taking it one day at a time and enjoying my time with Nu.

I thought I would share this journey, as I did with the first, to provide a sense of what it’s like for a mama with Fibromyalgia to do pregnancy. Find the rest of the diaries here.

Posted on September 21, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries: Weeks 25-29

Following the onset in week 22 or so, my low back and hip pain became worse. Sleeping was difficult, I had to start the night with a hot water bottle and as the night progressed it got harder to ignore. By 5am I wriggled around trying to get comfortable more than I slept. The morning was spent trying to mobilize and push through. My midday liedown became challenging for relaxing enough through the pain to rest and as the afternoon and evening wore on the pain became worse.

I tried third trimester yoga videos on YouTube (this one’s a goodie), used my heatpack religiously, took Panadol and Panadiene as sparingly as possible and attempted to pace appropriately. It felt like the business end of pregnancy came far too early!

I tried to really focus on eating nourishing food such as Bircher muesli, soups and salads. I also took a pregnancy multivitamin and probiotics to support my body.

The fatigue was reasonable (but difficult) given the battle that sleep had become. My body was heavily exhausted but I woke every one or two hours, sometimes more. Getting up was hard, but two year olds wake when they wake and you can’t ignore those loud “mama, mama” calls!

My tiny passenger seemed to make use of his growing space, simultaneously kicking and punching high and low. He always let me know he was there, growing nicely, getting ready to come.

The short Gestational diabetes test was not as awful with better planning this time. I ate a proper breakfast and took reading materials. Though the sugary drink made me feel dehydrated all afternoon!

Unfortunately the results were not good, so I had to do the glucose tolerance test…I had to fast for 10 hours and go to the lab at 8am (with no breakfast or coffee!), have a blood test, drink the same sugar drink, sit for two hours and have another blood test. I was quite unwell with it and so had to lie on the bed in fetal position to stop from vomiting, but I made it! I was pretty wiped afterwards and so hard a very quiet afternoon.

I was super pleased to find the results were “perfectly normal”!

At 28 weeks I crossed into the third trimester. With midday naps, pacing, good food, good supplements and regular physio I felt like I was coping quite well despite the battle that the nights brought (including dead arms every hour). The low back and hips were not so bad when I didn’t overdo it, the upper back was not so forgiving and I did get some regular spasming which wasn’t fun. Lying down with the heatpack, taking Panadiene and meditation helped.

By week 29 I was focused on organising the last of baby’s things so that I could rest more later, reading up on labour and enjoying my last weeks with Nu as an only child. This child brings me such joy and I really revel in the fact that he’s super rough and tumble but always has a kiss and a cuddle for his mama.

I thought I would share this journey, as I did with the first, to provide a sense of what it’s like for a mama with Fibromyalgia to do pregnancy. Find all diaries and other pregnancy resources here.

Posted on September 16, 2017July 12, 2019 by melissanreynolds — 5 Comments

MSM Supplement: A Review

MSM (methylsulfonylmethane) is an organic sulfur-containing compound that is meant to help with pain in the tendons, ligaments and muscles.

Some of the links are affiliate links, I may make a small commission at no extra cost to you. I only recommend what I believe in.

Dr Axe outlines six benefits of taking MSM, including joint pain, digestive problems and muscle pain and spasms (a biggie for me): “Research suggests that MSM can act like a natural analgesic, helping prevent and treat muscle aches and pains, throbbing and swelling while improving range of motion and mobility.”

The article goes on to state that, “MSM also restores the flexibility and permeability of cell walls within muscles, which means nutrients can pass through the tissues more easily, facilitating repair work faster and removing lactic acid, which causes that “burning feeling” following exercise.” This is great for people with Fibromyalgia, who often feel greater post-exercise pain – I often get severe pain in my lower body for up to three days post exercise, if I have overdone it.

An article on the Shawn Stevenson Health Show website includes detoxification and increasing energy as other benefits of MSM:

“Digestion is the biggest energy requirement of the body (Approximately 70-80% of your energy is spent on digestion each day). MSM increases the absorption of nutrients so that the energy expenditure on digestion is vastly reduced.” Which is good news for a person like me who doesn’t tend to take the nutrients from food efficiently, using iron as an example, despite a healthy level of iron rich foods I cannot keep my iron levels up without regular injections. Also, any efficiency in energy is a bonus for people with limited energy levels.

MSM and Me

I began taking MSM (this is what I used) in July as this was when I began to suspect the pain in my neck was actually Myofacial Pain Syndrome – painful, severe trigger points that recur no matter the treatment. Trigger points are usually considered separate to Fibromyalgia but there are some doctors who believe them to be part of it (like Dr Liptan).

After a Google search for potential side effects, potential benefits and checking any interactions with my current medicines (amitriptyline and low dose naltrexone) – I decided to try it.

It took about six weeks to build up in my system. At this point I noticed a slight reduction in pain, perhaps one pain point on average in my neck, which is actually a big deal for me. This helped reduce the number of severe headaches and I didn’t have any other pain relief for several weeks.

I began with tablets, they were big! I had to take one tablet two times a day, and it was difficult swallowing them. So when I finished the bottle, I ordered a powdered version. During the wait the symptoms returned. It took another few weeks to feel the benefit of the powder. It is much less of a burden to take the powder, half a teaspoon dissolved in a cup of water (which I skull) is really easy for me.

A minor medical event, separate to the Fibromyalgia occurred in August which set me back. But I am going to keep the low dose naltrexone and MSM going for the year’s experiment and I have just added moringa powder (which I will report on later) – moringa is a good source of protein and amino acids, as well as iron and magnesium which is said to work well with the MSM.

For help with your fight:

Posted on September 13, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries: Weeks 21-24

By week 21 my burgeoning bump had taken over! Forgetting my new size, I brushed against things and banged it a few times before learning (that can hurt!). At week 22, I wondered how I could possibly grow for 16-18 more weeks.

A nice, healthy, detoxifying, warming drink I fell in love with was warm lemon (juice of half), honey (1 tspn) and tumeric (1/4 tspn).

I started to think more about the birth. After a 20 hour posterior (baby facing the wrong way causing severe back pain) labour with Nu, I was really keen for a nicer birth story. The news that second labours tend to be shorter and that those who have had posterior labour previously don’t realise they’re in labour until fully established gave me some confidence! I was planning all I could to save my energy and to avoid the stress of the first few days that we had with Nu. The first was that my husband doesn’t leave me, if he had to go, I had to go too! The second was that I know the signs of back labour and if it occured again, I would ask for intervention sooner.

A steady low back ache developed again at week 21, disturbing sleep and making the day more painful. A heatpack, pelvic tilts and child’s pose were somewhat helpful.

The only thing that really helped was reducing my activity level, aiming for 8000 steps or less. I could manage this for most of the week, but on weekends it was more difficult. There’s always too much to do on a weekend and it’s always been difficult to keep up with my husband. Another hard lesson in pacing.

We named our wee boy and the sweetest sound is Nu saying his name and talking to baby through the bump.

At week 23 I felt like there was a lot going on physically. I was put on antibiotics for bacterial vaginosis. My low back and neck were troublesome, to say the least. And I began getting Braxton Hicks contractions. It was time to admit that I was quite pregnant! The countdown may have begun for the end.

I thought I would share this journey, as I did with the first, to provide a sense of what it’s like for a mama with Fibromyalgia to do pregnancy. Find all of the posts and more at Pregnancy Diaries and Resources.

Sign up to receive access to my free resources which include the PDF reports: Tips for Managing Early Pregnancy Symptoms, Navigating Pain Relief in Pregnancy and my free micro course Pregnancy and Fibromyalgia: Arm Yourself with Knowledge. This is part of the first module of my full eCourse Pregnancy and Fibromyalgia.

Posted on September 8, 2017 by melissanreynolds — Leave a comment

Fibro Mama Pregnancy Diaries: Weeks 18-20

The time to give up sleeping on my back came too soon! The night became a rather long struggle of tossing from side to side and waking up to dead arms. My back, shoulders, neck and glutes all yelled at me all night, no matter how I arranged the pillows. Even my meditation/daily rest became difficult due to positioning.

It didn’t help that Nu began really testing the boundaries and took extra energy to manage. Though, he was still very excited about baby, from 18 weeks he talked often about the next scan when he would see the baby dance.

At week 19 Nu got a really bad cold and was clingy and not sleeping well, which was really difficult. My pain issues from sleeping on my side and Nu waking me in the night and very early several times, made coping very hard.

Not having to sit at my computer for several hours four days a week really helped my neck and back. The work I did do seemed to flare it up a bit faster due to the lack of sleep.

It wasn’t all bad news, due to baby being tucked in the back it took a while for movements to become more frequent and obvious (which is the best part of pregnancy, until they wedge a foot in your ribs) but when they came it was reassuring.

One thing my second pregnancy taught me, is that the times my body craves coffee are actually the times I need rest. Having a two year old means I can’t always indulge in a full lie down meditation, however I can sit with my heat pack for a time. It makes such a difference. I can go from miserably exhausted, barely keeping my eyes open, to relatively normal after 30-45 minutes of good meditation.

Plus a 10 minute lie down can make a difference – relax (I use a variety of pillows); Close your eyes and count (in 10, out 10, in 9, out 9 etc) until zero; slowly imagine each body part relaxing (right hand thumb, first finger, second finger etc); lie for as long as you can gently breathing.

I saw an obstetrician at week 19 to confirm that my midwife could keep managing my pregnancy with me. When discussing pain relief she said she’d need to refer me back to the pain clinic, when I expressed my feelings of disappointment with the most recent doctor I saw there, she said that I may get a different doctor. *Sigh* She also said that Fibromyalgia doesn’t affect pregnancy, or vice versa. This stunned me. Pregnancy reduces sleep and places stress on the immune system and body, and Fibromyalgia is worsened through reduced sleep and stress on the immune system and body. The entire body is connected. You can’t have something happen in one area (eg. The uterus) and not affect other areas (eg. The back, neck, shoulders, hips, glutes, sleep system and immune system). So I felt like it was just me and my research in a 20 week endurance event. But I was used to that!

We made sure that my husband and Nu could attend the 20 week anatomy scan – again the baby was very busy so it took some time to capture all the pictures. We waited with baited breath to be told it was a healthy baby boy! Nu took a few hours to warm to the idea that it was a boy. I talked myself into it over the next day. Husband was happy.

I thought I would share this journey, as I did with the first, to provide a sense of what it’s like for a mama with Fibromyalgia to do pregnancy. Find all of the posts and more on my Pregnancy Diaries and Resources page.