This post is Fibromyalgia 101: I share what Fibromyalgia is, the definition, symptoms, diagnosis, treatment options and more.
Fibromyalgia is a chronic pain-based illness of unknown origin and cure. It effects approximately 3-6% of the world’s population. It is said to effect far more women than men, but there are definitely men who suffer with it too. It appears in-discriminatory in race, education level and socioeconomic demographics.
I have struggled with this illness for most of my life. I have also put a lot of work into my wellness journey. In 2017 I was the most well I had been since I was 17 years old. In 2020 I am the most well I can ever remember being. This does not mean that I am not affected 24/7 – I just have it as well managed as I possibly can.
For the concise, all in one place story of my journey and all that I do see my book Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia. Please note that this is an affiliate link, if you make a purchase I will make a small commission at no extra cost to you.
For a brief run down of what Fibromyalgia is, the symptoms and some treatments see below.
Fibromyalgia 101 What is It?
On the University of Maryland Medical Center website, Fibromyalgia is explained in this way: “Fibromyalgia is a chronic condition characterized by pain in the muscles, ligaments, and tendons; fatigue; and multiple tender points on the body.”
And on the same page, they list the signs and symptoms of Fibromyalgia:
- Widespread pain and stiffness
- Fatigue [and]/or trouble
- Paresthesia (tingling)
- Irritable bowel syndrome (IBS)
- Skin sensitivity
- Heightened sensitivity to noises, bright lights, smells
- Pain after exertion
- Memory lapses/difficulty
- Restless leg syndrome (RLS)
However, the trouble is that Fibromyalgia seems to be very unique to each person: how it comes on, what symptoms are present, what helps said symptoms.
There is also a debate as to whether trigger points are present in Fibromyalgia or part of a separate issue called Myofascial Pain Syndrome. A lot of the above symptoms overlap with a lot of different conditions.
Some Associated Physiological Abnormalities
Research has found alterations in neurotransmitter regulation, immune system function, sleep physiology and hormone level control. A lot of research suggests that Fibromyalgia is the result of central nervous system dysfunction – specifically an overactive nervous system, stressing and exhausting the brain (Dennis W. Dobritt, Fibromyalgia – A Brief Overview).
Getting Diagnosed with Fibromyalgia
This great article from Fibro Daze explains why it takes so long to be diagnosed with fibromyalgia, the process and the Widespread Pain Index and Symptom Severity Scale.
Long story short, it takes a long time to be diagnosed – years on average and multiple doctors – because it is a tricky illness with no widely accepted test and because a multitude of other illnesses must be ruled out. This is particularly difficult because Fibromyalgia tends to co-exist with a multitude of other conditions. It is a disease of mimicking and misdiagnosis.
Fibromyalgia 101: Treating It
We have been told it is incurable, but that is only because they don’t know what causes it. But some smart people are working on it and I believe we will see progress soon.
There are a multitude of treatment options on offer. Some of them help a little, some help a lot, some help one person a lot and another person a little – therein lies the difficulty.
I have been sharing my journey for the past several years because I want to help you cut down the time it takes you to find what helps you. I have carefully researched, trialed and written about all of the treatment options I have tried.
There are few certainties in treating Fibromyalgia but here are some from a seasoned Fibromyalgia fighter:
- Treatment will require multiple options (natural and medicinal)
- One option can help me incredibly and you not at all and vice versa
- Sleep is king. Tackle sleep first. With medication if you must. This is a widely agreed finding from key doctors who treat Fibromyalgia including Dr Liptan, Dr Teitelbaum and Dr Vallings.
- You can impact your quality of life.
- Coaching can help you on your journey.
Treating Fibromyalgia 101: The Manuals
I wrote about My Top Five Books for Fighting Fibromyalgia in this post. Start with Dr Teitelbaum and Dr Liptan – both of these doctors have Fibromyalgia themselves and treat people with Fibromyalgia.
What Works for Me
Treating Fibromyalgia Through the Central Nervous System
Pregnancy with Fibromyalgia
Check out “pregnancy” and “parenting” in the categories box (below or beside this post) for articles to help you have the best pregnant possible despite Fibromyalgia.
All My Articles on Fibromyalgia
Look at “fibromyalgia” in the category box for all of the articles that I have created to help you fight Fibromyalgia. There are over 250 of them.
My Journey: 2020
As of 2020 I am enjoying my best quality of life that I can ever remember. Thanks to low dose naltrexone, yoga, meditation and all the things I have enacted to be more well. I am so thankful every day.
I am hopeful and I am excited as to what the future brings.
My hope for you is that you keep fighting for yourself. Don’t wait for a doctor to do it for you. But do work with your doctor, find another if they won’t.
For more information
Try my FREE micro course You vs Fibromyalgia: Arm Yourself with Knowledge: it is a six section micro course designed to get you started in your journey.