What I think makes fibromyalgia so complex (and worse) is the gaslighting, the minimising, the delay in diagnosis and the lack of appropriately trained doctors.
It’s taken me a long time to get adequate treatment. So by the time I was able to start working on treatment, I was a lot worse than I needed to be.
In this video, I share why I think fibromyalgia is made worse by undertreatment.
Research proves it
It’s not just my experience. There’s research that shows the delay in fibromyalgia diagnosis and its impact on the severity and outcome: a large cohort study by Fausto Salaffi, Sonia Farah, Benedetta Bianchi, Maria Giovanna Lommano, Marco Di Carlo (Clinical and Experimental Rheumatology 42, 1198-1204, 2024) concluded:
“Delayed diagnosis is associated with poorer patient outcomes, including worsening severity.” Source
In other words, the longer it takes someone to get a diagnosis, the worse their Fibromyalgia is.
That’s why I keep sharing
I could have improved so much sooner. If I had been appropriately diagnosed with the ME/CFS earlier, I would have started researching it earlier. I would have found New Zealand’s specialist in ME/CFS before she retired. She would have started me on the key treatments that have changed my whole health journey much sooner.
If they’d taken the period issues seriously, sooner. I would have been able to control this massive perpetuating factor, which would have supported my nervous system and soothed the fibromyalgia.
This is why I share my story – so that you advocate for yourself and get the treatment you need as soon s possible.
What I recommend you start doing immediately
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Read my whole story and recommendations in my book
