Health Update 4 Months Postpartum with Baby #3 and Fibromyalgia

I haven’t given you a proper health update for a long while. I kept you updated about the pregnancy and have given a full rundown on my low dose naltrexone experiment. But nothing about my general health recently.

Being consumed with children and nursing and surviving has impacted my health, but not as badly as I feared it would. I had a bad flare after Noah, pretty much his entire first year was a flare. With Wyatt I did better thanks to starting low dose naltrexone (LDN). But this time I am fully established on LDN, and the difference is huge.

Parenting with fibromyalgia: How I am doing four months postpartum with baby #3

Pain

Average pain levels are sitting at 4/10 for my neck and shoulders. These trigger points are irritated by carrying my 7kg baby and lying on my side to feed him in the night. I have had several bad headaches and one so bad I had to go to bed for an entire morning. I am not taking pain medicines regularly, only paracetamol/acetaminophen during the worst headaches (I take the water soluble one as I cannot swallow pills when the headaches are bad and cause nausea so paracetamol is the only option at these times). My pelvis, glutes and legs are getting very sore at the end of days that I have had to carry the baby more and nights where I have had to lie on my side with baby for a long time. I have a feeling that this is due to active trigger points from labour. But generally, day to day, I am doing much better. I am using my heat pack, topical, un-medicated creams and hot showers daily.

Talking about trigger points – I have put more effort into researching and treating them. I have been using my Targeted Symptom Plan template (part of this kit in my Etsy store) to work on these.

Fatigue

Living on 6-7 broken hours of sleep is difficult for anyone and I am so thankful at how well I am coping. A 20 minute meditation makes all the difference on the days when I can. I cannot wait for baby to consistently sleep in four hour stretches!

New things to try

A person in a group I am in on Facebook suggested a brand of magnesium to try called Magnesium L-Threonate (please note this is an affiliate link and I may make a commission at no extra cost to you). Apparently it crosses the blood-brain barrier effectively. You might like to research this.

Baby product that has been saving my life

I have been so grateful for my baby wrap (affiliate). The day that I first put it on the baby stopped an hours long fussing spree! This holds baby closer to your body which reduces the strain on your back and shoulders. It also sits around your waist, not near your pelvis, this relieved the pressure that the normal front pack placed on it. At first I had to use it for all naps. Then just for naps that he woke up early from (read: all) and needed extra sleep time to be less fussy. I also use it when I am taking the four year old into kindy with the two year old and baby. I prefer my Beco Gemini front pack (affiliate) for this as it is much faster to put on, but it was stolen with our car a couple of weeks ago.

Stress

Speaking of cars. First, I was rear ended while driving one car with the baby in it. That car has been written off (in a very slow process) so we are hunting for the ideal replacement. Then the second car was stolen (with my baby carrier and three car seats in!). Very stressful. On the day of the accident I had to practice careful breathing and some relaxation techniques. I dealt with it much better than I would have several years ago. But it hasn’t been much fun navigating all this.

What’s next?

I am studying a life coaching course on Udemy to support my mission here on the blog. Do come along and join my Facebook group if you want access to super special discounts while I am setting up this service. I am trying to get baby to begin taking a bottle so I can catch a break one day. I am also considering how and when to get back to work with three tiny children – one of whom seems destined to be breastfed forever!

How are you doing? Do let me know if these health updates are useful for you.

You might also like these articles:

Baby Wearing with Fibromyalgia

Healthy Practices I’m Doing with Three Tiny Ones and a Chronic Illness

Tips for Coping with a Newborn and Fibromyalgia (Chronic Pain and Chronic Fatigue)

Tips for Coping with a Newborn and Fibromyalgia (Chronic Pain and Chronic Fatigue)

Having done this three times, I have formulated some tips for coping with a newborn and fibromyalgia. They are split into the key areas for dealing with fibromyalgia in general – sleep, general health, pain management and expectations.

Sleep is king (always) and for coping with a newborn with fibromyalgia

  • Give baby to your partner/support person with a bottle (formula or expressed breast milk) and go to bed early. With our first I expressed at 8.30pm and went to bed at 9pm. Husband would hold sleeping baby, feed him when he woke, wind him and bring him into the room. Those precious hours of sleep made a huge difference, especially as I flared the worst with him. Unfortunately we haven’t managed this with our second (reflux and colic, we had to keep each other company in the storm) and third (I’m breastfeeding and he refuses the bottle) and I so wish for those three or four hours of sleep!
  • Find a person each day to visit and hold baby while you nap or meditate. Unless you are lucky enough to have a baby that naps in their own bed for more than 20 minutes at a time, I never got one of those!
  • If you don’t have a visitor to hold baby and baby isn’t napping in their bed for you, lie down while holding baby (meditate, pray, read, watch television -just don’t move) -they will probably sleep better and you can rest.
  • Help baby sleep. With all three babies I fell into the trap of doing all the things and just made it harder to fall asleep.With our first we waited five overtired months to sleep train and after much trial and error we found he needed a good 15 minutes alone to decompress before he slept 7-7 with a 10pm dream feed (anything we did just prolonged it and made it super difficult for him to sleep).With number two at 22 months (the reflux made us nervous to sleep train) we started ignoring him in the night, he would grizzle for 10 minutes, go back to sleep and wake in the morning so much more refreshed than us going in and out all night.With number three I was standing, jiggling, patting and shhing and it took ages to get him off. Then I noticed my husband would sit on the couch, jiggle him a little, baby would cry for a few minutes and then go off to sleep! If I catch him before he’s overtired, ensure he is well winded, swaddle him, sing his songs and put him down awake he will go to sleep himself with literally a minute of grizzling. I haven’t figured out how to get him to do longer than 20 minutes of sleep but it is much nicer for both of us. We are setting the foundations for later sleep. Sleep is important for mama and baby.

Physical health

  • Drink lots of water
  • Eat healthily and regularly
  • Take a multivitamin
  • Check your iron levels and address low levels
  • Stretch
  • Massage yourself with lavender oil regularly
  • Take a hot shower or bath every day
  • Get into the sun for at least five minutes
  • Go for a gentle walk, even if it’s five minutes in your garden or down your street
managing a newborn when you have fibromyalgia

Pain relief

  • Do all of the above
  • Enact your natural pain relief mechanisms from pregnancy
  • Discuss medicines for breastfeeding (if you choose to/are able to nurse) before baby comes (and there are medicines that are alright for nursing – see this article).

Other tips for managing a newborn with fibromyalgia

  • Aim for one or two tasks a day outside baby that are crucial and let the rest slide (ie dishes and washing).
  • Keep in touch with your family and friends, even if only by text.
  • If something doesn’t seem right, ask for help (excessive wind etc).
  • Know that the newborn that takes two hour naps every 45 minutes and sleeps from 7-7 with two or three feeds is NOT the norm.
  • Enjoy that baby and take lots of pictures, they will grow and this stage will pass.

I’d love to hear your tips?
If you are managing a newborn with fibromyalgia, or will be soon do come and join Pregnancy and fibromyalgia Facebook group.

More articles for you:

Baby Wearing with Fibromyalgia

Healthy Practices I’m Doing with Three Tiny Ones and a Chronic Illness

Nursing with Fibromyalgia: My Experience and Some Research


Hello friend, are you new here? I’m Melissa and I am on a mission to see that everyone receives resources and encouragement to thrive with fibromyalgia. Please come and join my free You vs Fibromyalgia micro course by signing up to my newsletter. You will receive access to a free resources page too!  If you are curious about me and my journey you can have a search through the archives. Check out the What I Offer Page for all of the resources here.

You vs Fibromyalgia Equipping You to Fight

I am super excited to announce that I am running You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue and Insomnia full eCourse!

 

You vs Fibromyalgia eCourse my research your plans to fight chronic pain chronic fatigue and insomnia

While my micro course You vs Fibromyalgia: Arm Yourself with Knowledge is a free introduction to some of the modules in the full course, it isn’t exhaustive. This course has a lot more information, so if you’re ready to dive in for more and create your own pain management plans, trial some sleep tips, learn about low dose naltrexone for fibromyalgia and more – then come and join us!

If you learn only one thing from anything I ever write, I hope it is that you can impact your quality of life. I have made a huge difference to my quality of life through research and personal trial and error. But it took a lot of time. I want to save you that time.

See below for my brief introduction video about You vs Fibromyalgia

I have just enough time to run this course before baby comes in November, so it won’t be offered again until next year.

The stats of the course aka what you get

  • Seven modules with
  • Short video lessons
  • Templates to make your own pain management plans, a sleep diary, a list for keeping track of the things you’d like to try and a form for working out how you could create some space and make the most of your life despite fibromyalgia
    information sheets
  • The workbook – with all of the lessons, information sheets, templates, heaps of extra reading with space for notes!

Between this course and my book Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia (affiliate link) and my free resources pages – I am content that I have shared everything I can to help you not suffer as long as I had to. Obviously I am not a doctor and there are often more issues than just the fibromyalgia at play. A doctor and medicine definitely have their place in treatment, but I want to also share all of the things you can do yourself – today – to fight the fibromyalgia.

Yes, I am just as ecstatic to join the journey!

Pain Relief in Pregnancy with Fibromyalgia

Pain relief in pregnancy is a big issue for those who live with chronic pain. For those of us whose symptoms worsen during pregnancy, it’s a minefield.

Author’s Note: This article appeared first on The Mighty

pain relief in pregnancy with fibromyalgia

My fifth tip for pregnancy with Fibromyalgia is to get a pain management plan in place – preferably prior to becoming pregnant.

There are some medicines that are categorically unsafe for pregnancy. There are a lot of medicines that they just don’t know enough about, performing experiments on pregnant women, particularly involving something that may harm a baby, would be unethical. So literature relies on data provided by pregnant women. This website Mother to Baby  provides fact sheets, access to professionals about medicine in pregnancy and more.

The first thing to do when considering pregnancy with a chronic pain-based illness would be to discuss plans for pregnancy with your doctor. With my first pregnancy, we didn’t talk to the doctor before conceiving, and then when we were discussing the only medicine I was on (amitriptyline) I nearly had a panic attack at the thought of going off it. My doctor called a specialist and they agreed that the benefits outweighed the potential risks – for me and my unique situation.

Sleep is a big battle for me, I enact a long list of sleep hygiene tactics every day; take a low dose of amitriptyline at 8pm, take a low dose of naltrexone (I only started this after I had my second baby, prior to this I would take pain medicine at this time) at 9pm, get into bed with my heat pack, do a body scan meditation, and if I’m lucky, fall asleep for a few hours at a time. A good night sees me fall asleep relatively quickly and only lose an hour to awake or restless times. It would appear that the second the pregnancy hormones enter my body, sleep runs away screaming. Pain also becomes a much bigger issue when I have to lie on my side (as you must once baby gets big enough to put pressure on an important vein when lying on your back).

More articles about pregnancy with Fibromyalgia

Pregnancy with Fibromyalgia The First Trimester Diaries
Necessary Baby Items for a Fibro Parent
Fibro Mama Pregnancy Diaries: The Delivery
Pumping or Expressing for Your Baby: Parenting (Fibromyalgia or Not)

Pregnancy and Fibromyalgia An Interview with A Fibro Specialist

You do not have to be miserable, there’s also research that suggests that under treated pain can negatively affect the pregnancy.[1] So if your doctor refuses to help you with pain relief, get a second opinion. Do some research for yourself and present it to them. I provide what I did during pregnancy to be as well as possible in my book Pregnancy and Fibromyalgia.

pain relief in pregnancy with fibromyalgia

Here are a few natural pain relief mechanisms that I enacted during my pregnancies:

·         Heat pack
·         Warm shower or bath
·         Essential oils such as lavender and peppermint (for external use only and with a carrier oil after the first trimester)
·         Magnesium oil (I never got a calf cramp in my second pregnancy using this)
·         Gentle walks and stretching
·         Meditation – especially ones specifically for pain relief on pregnancy, there’s heaps on YouTube to search up
·         Massage – either for yourself, or from a partner, friend, or therapist
·         Rest and sleep as much as you can
·         Belly support belt – I had symphysis pubis disorder (my pelvis basically widened too far) and this really helped.

I always recommend remembering that pregnancy is finite, there is an end date and a beautiful baby as the pay off. I also was a bit smug in my second pregnancy because I knew that I am one of those very rare women who actually sleep better with a newborn baby than pregnant, the pain levels are just so high that sleep is almost non-existent in the final trimester. Last year, once I delivered my second baby, my bed that had previously felt as hard as a rock seemed luxuriously soft. So in those one, two or three hours that the baby was asleep – I slept like the dead, which is a very rare occurrence for me.

I really hope that this post helps you on your way to relieving some of the pain involved in pregnancy with a chronic illness.
[1] Malaika Babb, PharmD, Gideon Koren, MD FRCPC FACMT, and Adrienne Einarson, RN. Treating pain during pregnancy. Can Fam Physician. 2010 Jan; 56(1): 25, 27. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2809170/


For more information about pregnancy and Fibromyalgia:

See more in the Pregnancy and Fibromyalgia Resources page

Check out my book Pregnancy and Fibromyalgia

Affilitae notice: Please note that some of my links are affiliate links. If you make a purchase using my link I may make a commission at no extra cost to you.

Living the Best Life with Fibromyalgia: A Book Review

At this point, I’ve read a lot of the research and books by doctors with Fibromyalgia, what really perks my ears up is a book written by a fellow fibro fighter.

Alisha Nurse interviewed me for her Overcomers series recently and I began reading her book Living the Best Life with Fibromyalgia. She gave me a free copy in exchange for an honest review.

Affiliate notice: Please note some of my links are affiliate links, if you make a purchase, I may make a small commission. 

It has a pretty and inspiring cover:

living your best life.PNG
Image from GoodReads

In the introduction, Nurse shares how she was diagnosed – after years and years of being fobbed off by doctors (sounds familiar).

The chapters are broken into: Challenges, Diet, Recipes, Medication and Supplements, Lifestyle, Meaningful Living with a summary at the end.

In challenges Nurse presents some of the key issues we face.
The symptoms

“Each of us battles our demon symptom, the one symptom that is king above all else. For me, that’s the chronic exhaustion. But my GP says there is nothing she can recommend for me except exercise.”

I can relate to this, my demon symptom is my neck and doctors have been generally unhelpful.

Other challenges include: the people who disbelieve us. The impact of stress. The invisibility of our illness.

In Diet, Nurse outlines how she (step by step) implemented dietary changes. She provides a list of healthy foods.

The recipe section includes some nourishing teas to try and some delicious, nutritious foods.

In the medicines and supplements chapter she discussed an important point around medicines:

“When I consider how fibromyalgia steals our dreams and lives, I staunchly decided that I would have some quality of life on medication than have a longer life in a worse off position.”

I want to thank Alisha for this piece of honesty with which I wholeheartedly concur.

In Lifestyle, Nurse lists some good, practical tips for living well with fibromyalgia. Including eating well, Epsom salt baths, exercise, pacing, managing stress.

Meaningful Living – help others, have empathy and faith.

“Have faith, believe and work without ceasing.”

In this compact handbook, Nurse provides you with some of the things that have helped her. Hopefully you can find something here to help you on your journey.

Find her book here.
Find her website here.

If you love reading, like me, you can try Amazon Kindle Unlimited! Just sign up here Kindle Unlimited Membership Plans. It’s also available for those of us who use Amazon.com.au *squee*.

If audio books are more your speed, as they are for me with three little ones, you know you can get a free trial of Audible on Amazon here. I’ve recently started reading a lot more audio books as the hands free option is far easier to access with the wee ones. You will get access to two audio books, plus two Audible Originals, and other cool membership options for 30 days. Cancel anytime if you don’t want the full subscription.


Find my book, which is everything I know and do to fight Fibromyalgia:

Melissa vs Fibromyalgia book cover

 

You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue & Insomnia

I got a bit excited about sharing my knowledge and went ahead and began planning a full eCourse –
You vs Fibromyalgia: Helping You Fight Chronic Pain, Chronic Fatigue and Insomnia.

You vs Fibro full ecourse

It is for anyone wanting to fight chronic pain, chronic fatigue and insomnia. Most of my recommendations are self-actionable – you make choices every single day that effect your quality of life, so you have the most power to live well with Fibromyalgia.

It will have seven modules:

  1. Knowledge (knowledge is power)
  2. Pain management
  3. Sleep
  4. Meditation
  5. Yoga (or gentle exercise)
  6. Pacing and Boundaries
  7. Brain Fog

What you get:

  • Five modules
  • Four (or more) videos
  • Four templates to make your own plans for pain management, sleep and things to try
  • Four (or more) information sheets – including my list of further reading – this is from my spreadsheet of articles, research and information about Fibromyalgia/Chronic Pain/Chronic Fatigue and Insomnia over the past five years broken down by subject!
  • A lot of further reading for you to follow up areas that interest you and take your learning further
  • The workbook with all of the lessons, information sheets and templates with space for notes.

A course is a lot of work – there is a lot of information here, so I will run this course from 1 April 2018 if 10 people enroll before March 15th.

As a special offer, I will give early bird enrollments at $69 (value $125!) PLUS all early bird enrollments will receive the free bonus lesson Support.

You vs Fibro full ecourse

Learn more and enroll here (you can also see a free preview of the first lesson)

I hope you will join us in this journey.

 


If you’re not ready for a full eCourse, what else can you do?

you v fibro e courseTry my free micro course You vs Fibromyalgia: Arm Yourself with Knowledge this is an introduction to the information available in five lessons.

 

 

sign up to newsletterSign up to my free resources page which has free PDF printable reports, templates, micro courses and more.

 

What I’d Start with upon Diagnosis with Fibromyalgia (If I got a Do-Over)

Getting diagnosed with Fibromyalgia and living with the effects of chronic pain, fatigue and insomnia is difficult. I have often thought about what I’d start with upon diagnosis with all the things I know now. This is why I decided to write my journey and everything I do to cope with the symptoms of Fibromyalgia and myofascial pain syndrome in my book Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Fatigue and Insomnia. (affiliate note: this is an affiliate link, if you make a purchase using this link, I will make a small commission at no extra cost to you).

Author’s Note: This article appeared first on The Mighty.

what id do upon diagnosis

Here’s an excerpt from my book about what I’d start with upon diagnosis, if I had a do-over.

When you are first diagnosed with a chronic illness such as Fibromyalgia or Chronic Fatigue Syndrome, your brain has rather a lot to process. If you’re buried too deep in pain and fatigue, the enormity of the challenge may not hit you immediately.

You, like me, may have been diagnosed after a long battle in which you have learnt to push through and assimilate the challenges into your life. Potentially making yourself even worse. Or you may have been struck down, as if by a lightning bolt of pain and fatigue.

So here are the things I’d start with upon diagnosis

Research

You are your advocate, medical coordinator, cheerleader and guru. You need to guide your doctor. You need to track your progress. Get a book, or open a digital file and write it up. Keep articles that you come across. Because when you’re ready you need to experiment. Your doctor can only take you so far, if they want to come on this journey with you at all.

My course You vs Fibromyalgia: Arm Yourself with Knowledge is a good start. This is a FREE five lesson eCourse to help you fight Fibromyalgia. Sign up here. This is what I wish had existed when I was diagnosed.

Experiment

There are many types of treatments: medicines, supplements, alternative options, physical therapies and diets. We all have different chemical make ups, different genetics, and different triggers. This means we need to find our lifestyle that gets us as pain free and awake as possible. The complexity of this is huge, especially when you take in the fact that synergies, mixtures of multiple things, may be the solution. Your body may need a mixture of medicines, supplements, physical work and mental work.

Hit Your Lifestyle

You can’t keep going in the same way. That way didn’t work. Try to journal it out or talk it out, or whatever you do to think things through. You need to rebuild your lifestyle. Find what works for you, what your passions are (the non-negotiables of your life) and go from there. I spent a long time dreaming of working slightly less hours so that I could rest more and try to recover – and reducing my work hours was only the beginning of my journey to better wellness.

Find Your People

If there’s no one in real life, find a virtual community. You need to be exposed to new ideas and you need to be able to ask questions. There are many people struggling along with chronic illnesses sharing their journey. Just try to keep it positive. Most people would have brushes with depression/sadness when they’re in daily pain and exhaustion. Having a search through the articles written by other people with chronic illness on places like The Mighty is a good start.

We have a community over at Melissa (you) vs Chronic Pain, Fatigue, Fibromyalgia Facebook group – we talk practical tips for improvement.


For more information:

Hello friend, are you new here? I’m Melissa and I am on a mission to see that everyone receives resources and encouragement to thrive with fibromyalgia. Please come and join the team by signing up to my newsletter list. You will receive access to a free resources page too!  If you are curious about me and my journey you can have a search through the archives. Check out the What I Offer Page for all of the resources here.

My Pain/Fatigue Friendly Yoga Links

I’m a member of three Fibromyalgia support groups, two of which focus on actively fibro friendly linksbeing well. I love this!

Something I find myself sharing all the time are my favourite yoga exercises for pain and fatigue.

I thought I’d share the list here:

Bed yoga for spoonies

Chair yoga – I do this when I’m particularly stiff first thing in the morning, seated cat and cow and forward bend are delicious first thing.

Morning yoga

Gentle yoga for chronic fatigue

Yoga Nidra meditation for healing – this is one of my regular practices (I do Yoga Nidra daily)

Sleep Santosha YouTube channel has so many great videos for spoonies

Yoga for neck and shoulder tension – also have a look at Sarah-Beth’s other videos for some body specific yoga and beginner routines.

Half, or sanding, sun salutations – sun salutations are my base routine when I’m doing a 10-30 minute yoga routine and this is a great half version for times when you can’t get through the whole thing.

You’re turn, what’s you’re go to for spoonie friendly yoga?

Running on Empty

I’ve been running on empty since my pregnancy with Nu.

Thinking that I was fighting Fibromyalgia, I actually engaged in a drawn out raid and burn on my body. Any leeway I made was immediately voided by my overreaching ways.

PhotoGrid_1459840537711
Tired… Just tired

There’s no denying it, a family with a mortgage in a big city can’t live on one income forever. So I rushed back to work, not realising how deep the deficit caused by pregnancy and the first year of parenthood was. I thought that “only 20 hours” was a fibro friendly compromise. And I have managed, but at a cost.

My neck has deteriorated to the point that it stops me from obtaining many whole sleep cycle most nights (90 minutes, necessary to reach the deeper sleep state and repair). We’re meant to have about four a night. No pain relief can mute the pain and it’s always tight and stiff.

So, at the conclusion of my work contract, I have chosen to take a break. There are many things I need to do, but I will hopefully have the freedom to rest as well.

Here are the self care practices I plan to engage in:

  • Rest and meditation
  • Pacing
  • Swimming and spa soaks
  • Good, whole food

I’m really hoping I get another appointment with the pain clinic and that they might have something, other than medicines that don’t work or have severe side effects, to help. If I can control my neck, I can sleep. If I could sleep, properly, regularly, the possibilities are endless!

What it’s Really Like to Live With Fibromyalgia

I tend to sanitize my illness for people. Or I’ll say what’s bothering me the most (usually my neck or the fatigue). Usually my writing is very positive and I try to look at the bright side – what I can do, not what I can’t. Today I am going to share what it’s really like to live with Fibromyalgia, as someone who has lived with it for more than ten years.

what it's really like to live with fibromyalgia

The definition of Fibromyalgia, chronic widespread musculoskeletal pain, chronic fatigue and sleep disturbances, doesn’t convey the depth of the impact of this illness. In addition, the body is a whole – therefore one system acting up has effects on others, for example my tummy tends to get upset when I’m very sore.

Could a person imagine that they had one or two hours less sleep than their body needs, never sleep in a block of longer than one or two hours (that’s rarely completing a whole sleep cycle), spend some time awake (alone, in the middle of the night) in too much pain to sleep, need a medicine to help them get to sleep but still struggle to do so, and never wake feeling well or refreshed (whether they’d had four or nine hours sleep) EVERY DAY for ten years, they may understand my illness.

People who are just tired don’t get this level of exhaustion. This level of fatigue causes brain fog – loosing words, swapping words, memory problems and clumsiness.

I do everything possible to maximise sleep. It just doesn’t seem possible for me to sleep well.

In addition to the sleep problems and soul crushing fatigue that accompanies this, there is the pain. Chronic pain seems so tidy a term. What it means is that I have pain levels of 4-6/10 every day.

My neck takes the centre stage, interrupting sleep, being extremely stiff in the morning and generally tight and sore. When it gets worse it causes secondary symptoms – severe headaches, dizziness, nausea and vomiting. I have to see a physiotherapist every three weeks for neck tractions and acupuncture to keep it away from the worst end of the spectrum. Working at a computer, sitting still, and moving too much aggravate it.

My back is a close second, it often feels two moments away from spasm – like the back of the ribs are electrocuting it. When my lower back gets sore it radiates down into my glutes and upper legs. All down the spine are tight, angry muscles. I have to put a pillow under my legs in order to lie down.

There are more transient pains that come and go, such as my wrists and lower arms when I’m at work. My upper arms always feel bruisy, if I bang into a door frame (brain fog steals spacial awareness) it can hurt for ages, people grabbing my arm hurts far more than it should (hyperalgesia). Severe period pain for a week every month (dysmenorrhea). My knees have recently decided to join the party and have caused some problems – on some days the pain gets so bad that I can’t walk and walking is one of my daily pain management techniques.

Fibromyalgia also causes flare ups – a temporary exacerbation of one or more symptoms lasting from a day to several months. My entire pregnancy and my son’s first year were a giant flare up, all of my symptoms were wildly worse (pregnancy symptoms are like mild to moderate Fibromyalgia symptoms – so I had a double dose).

Sleep deprivation doesn’t help pain. There’s been studies on this – healthy subjects subjected to minor sleep deprivation develop Fibromyalgia symptoms. Luckily for them they could have a few good night’s sleep and recover. Severe sleep issues has been widely researched and is extremely detrimental to health .

Every day requires multiple pain management techniques. Including stretching, meditation, resting, pacing, walking, trade offs and judicious use of pain medicines. My pain specialist has recently made me see that by not controlling the pain as well as I can I am causing physiological damage – chronic pain changes the body – and I am leaving myself susceptible to more pain and fatigue. The neverending cycle of Fibromyalgia.

You might also like:

Free Printables from Melissa vs Fibromyalgia Book

My Low Dose Naltrexone (LDN) for Fibromyalgia One Year Experiment

Essential Oils for Pain Relief and a Pain Cream I am Loving

What I’d Start with upon Diagnosis with Fibromyalgia (If I got a Do-Over)

Here’s the thing – I manage this illness well.

I, mostly, kick fibro’s butt. I work 20 hours per week, have a toddler, a hunky hubby and hobbies. I do a lot while in a lot of pain. There are people far worse off than me. There are people with milder symptoms than me. But for my level of symptoms I cope remarkably well. The pain specialist, my doctor and the rheumatologist are impressed with my progress. The pain clinic has nothing but medicines to offer me because I do everything else they suggest.

I wish, with all my heart, that I didn’t have these limitations. I fervently pray for healing. I feel more guilty than anyone could know about the effects of these limitations on my family.

So when I make a call to miss out on something, to go to bed or ask for help – I’m far past the point I can push through.

I have exhausted every avenue I have and know I can’t afford the consequences coming to me if I don’t rest. I’ve been doing this for ten years. I have lived it, researched it and constantly push myself. So all I ask of the people around me is to respect it when I say I can’t do something or that I need help. Trust that I am just trying to live well. It’s incredibly hard and I survive only by my faith in God and incredible willpower.


For more information:

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melissa vs fibromyalgia book angled shadowed
My book is everything I do and have researched to fight Fibromyalgia